8 a.m. - 8:30 a.m.
Registration & Breakfast
8:30 - 8:45 a.m.
8:45 a.m. - 10 a.m.
How Palliative Care Will Heal Medicine
Following a heritage of two centuries, the contemporary profession of medicine is primarily focused on the diagnosis and cure of disease. And for the past century, it has been increasingly dominated by science and technology. The result of this trend is a belief that medicine is a science marked by impersonality and objectivity, with doctors trained in and devoted to both. Dr. Eric Cassell will take us on a journey to discover how doctors—and equally all caregivers—came to understand the inadequacies of the medicine they had been taught, and returned to understanding the centrality of their historically primary goal: the relief of suffering. He will explore how these lessons will effectively change and improve the contemporary profession of medicine and lead us back to the goal of relieving suffering.
10:15 a.m. - 11:30 a.m.
Grassroots Palliative Care: Fully Engaging our Communities
Our “community” includes where we live, work and play—which means community-based palliative care can be so much more than pain and symptom management outside of a hospital setting. The next frontier in palliative care is breaking down the barriers to palliative care access through education—to consumers and payors—about the meaning and importance of palliative care. Presenters in this session will share the successes and challenges of several innovative community-based palliative care programs, including advance care planning outreach initiatives, volunteer trainings, mortality discussions and palliative care lectures.
Improving the Quality of Palliative Care: Lessons from Collaborative QI
Measuring quality is essential for helping palliative care programs grow, become sustainable, and improve patient care—and it is increasingly necessary to meet payment reforms under the current terms of the Affordable Care Act. The Palliative Care Quality Network (PCQN) is a network of 80 hospitals developing tools and resources to help meet the needs of palliative care providers for data collection, reporting, and quality improvement. In this session, presenters will discuss the lessons learned from three specific quality improvement projects and share best practices for continued quality improvement.
Prognosticating for Adverse Outcomes Using Palliative Care
If there is one thing on which we all agree, it’s that palliative care needs to move further upstream in the healthcare continuum, and the care we provide must be consistent with the goals of the patient and family. In this session, Dr. Hoefer will showcase how to guide elderly patients and families through decision-making processes to balance the risks and benefits of hospitalization or surgery. He will also examine how we can prognosticate for patient-centered quality metrics before adverse outcomes occur—such as hospital-induced delirium, functional decline and hospitalization associated disability.
A Learning Collaborative to Improve Home-Based Care for Children
Despite increasing access to home-based palliative care services for families and children with life-threatening illnesses, community-based hospice care services are still lacking for pediatric patients. Children’s Hospital Los Angeles is filling the void and meeting the needs of their community through their Pediatric Hospice and Palliative Care Learning Collabortive. Learn how to replicate this model and discuss strategies and lessons learned to improve care for children in your community.
Defining, Evaluating & Articulating Social Work in Pediatric Palliative Care
Social workers in pediatric palliative care invest time and undivided attention to patients and families at critical moments of medical decision making. Unfortunately, the nuanced role of pediatric palliative care for social workers has yet to be defined, and many in the field are still finding their way. In this session, presenters will define the scope of practice and unique role of pediatric palliative care social work, identify the challenges faced, and discuss strategies to communicate about and advocate for the need of pediatric palliative care social workers within the pediatric palliative and hospice care teams. End of life and bereavement topics will be emphasized.
11:30 a.m. - 12:30 p.m.
12:30 p.m. - 1:15 p.m.
We Can Do It! Palliative Care as a Social Movement
Every major improvement in public health has been advanced by an accompanying social movement. Just think about the millions of lives positively impacted through improved maternity care, seat belt laws, smoking regulations, AIDS care, and the changing public perception about organ donation. Social campaigns urging us to “Buckle Up for Safety” or “Donate Life” are messages to move the public to action. Today, our aging population is ballooning just as uncertainties surrounding the Affordable Care Act are on the rise. Caring for our elders and the seriously ill is at a tipping point for action—and the time to transform our health care system to better care for these people is now. Learn how the Coalition for Compassionate Care of California is ready to spur a new phase in the palliative care movement.
1:15 p.m. - 2:30 p.m.
The Road Unpaved: When Young Adults Become Engaged Patients
This is a unique opportunity to hear from a thoughtful panel of young adults who are living with life-threatening conditions and navigating the transition into adulthood. During this interactive Q&A session, panelists will talk candidly about their personal experiences receiving medical and palliative care, share what matters most to them and what they want clinicians to know when caring for adolescents and young adults. Attendees will be able to ask questions of the panel in a safe, supportive and nonjudgmental environment.
2:30 p.m. - 3:15 p.m.
Office hours are informal, small group discussions focused on sharing best practices on specific topics. Look for a full line up of speakers and topics in the coming months.
3:30 p.m. - 4:30 p.m.
Not Whether… But How: Reframing Our Relationship to The Inevitable
We are all mortal, and it is inevitable that each of our lives will one day come to an end. BJ Miller, MD, has come face-to-face with this certainty. Dr. Miller takes us on a journey to consider how our personal and professional identities are linked to elements needed to change the culture of providing health care, and reconsider the role mortality plays in our own lives.
4:30 p.m. - 6:00 p.m.
Reception & Poster Session
Join us for cocktails, hors d’oeuvres, and a poster session featuring a showcase of the best community-
based palliative care programs and projects from around the state.
6 p.m. - 7:30 p.m.
Special Evening Session: A New Kind of Heroism
In this session, Dr. Zitter will describe a new type of heroism which she encountered in the early 2000’s while serendipitously brushing up against the burgeoning palliative care movement. In this new heroism, the patient or their surrogate are encouraged to participate instead of being treated as passive victims, and clear and honest communication rule over fantasy and avoidance. Join us in discussing this new approach to heroism, and the transformative capabilities it could have on our treatment of the dying.