Two days of inspiration and innovation in palliative care

Now in its 8th year, the Coalition for Compassionate Care of California Annual Summit is designed for physicians, nurses, social workers, nursing home administrators, chaplains, patients and others interested in clinical research, quality and policy as it pertains to palliative care.

Download Now: Summit Presentations, Slides & Resources

DISCOVER best practices for creating meaningful and engaging patient experiences to improve care for all who are seriously ill or nearing the end of life.
IMMERSE yourself in two days full of talks, breakouts, office hours and social events.
MEET thought leaders and palliative care innovators from around the country.

PEDIATRIC TRACK new in 2016!
We are pleased to announce a pediatric palliative care track that will run throughout the Summit! View the Summit schedule and office hours to find programs specific to those who provide care for children and adolescents.

Tickets

  • Member Price
    $535.00 USD

    Members of the Coalition for Compassionate Care of California
    save $100 off the registration price.
    Thank you for supporting us!

    Members
  • Non-Members
    $635.00 USD

    Select this option if you are not a CCCC member.
    Tip: Use this link to become a CCCC member for $50,
    then save $50 by purchasing a Member ticket.

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Location

Schedule

  • May 12, 2016
    8 a.m. - 4:45 p.m.
    Tabletop Exhibits
    8 - 8:30 a.m.
    Registration & Breakfast
    Judy Thomas, JD
    8:30 - 8:45 a.m.
    Setting the Stage: Making the Most of These Two Days
    “e-Patient” Dave deBronkart
    8:45 - 10 a.m.
    Let Patients Help: How doctors, nurses, patients and caregivers can partner for better care
    e-Patient Dave chose his slogan – “Let patients help” – carefully. It’s not that doctors are bad or health care corrupt. Rather his message is about enabling, empowering, engaging and equipping patients to play an active role in their health care. e-Patient Dave believes that rich conversations await us as patients and providers alike shift away from the paternalistic past and toward the shared responsibilities of participatory medicine.
    caroline_boazcolleen_mosseileen_piersarocio_guillen-castrillosharon_hamillveronica_andover
    10:15 - 11:30 a.m.
    What Gives Your Life Meaning: A young adult-focused palliative care campaign
    Learn how CSU San Marcos took up the challenge of educating its students through the “What Gives Your Life Meaning” campaign, a six-week campus-wide campaign designed to increase students’ knowledge of palliative care and advance care planning. Presenters will also outline the steps to engage emerging adults in discussions about end-of-life care.
    lorellen_greenlouise_della_bellaoswald_jauwena
    10:15 - 11:30 a.m.
    Delivering Palliative Care Across the Continuum: A patient-focused healthcare system’s story
    Hear how MemorialCare Health System in Southern California is transforming its palliative care services. The program now offers services across the entire continuum of care, including a palliative care at-home program serving patients of south Orange County. MemorialCare looked at other successful programs in the region and then worked to educate all levels of the organization, from direct practitioners in the hospital to medical offices in the community.
    jeanne_west
    10:15 - 11:30 a.m.
    DASH: Innovative Urgent Care Services at Home
    In California as well as nationwide, statistics reveal that seniors often use hospital emergency rooms (ER) for what is considered routine or urgent care. Doctors Assisting Seniors at Home (DASH), a program funded by the Affordable Care Act, has decreased ER visits by an astounding 40% among the older adults it serves! Learn how the DASH program has made a dramatic improvement in the lives of seniors, often avoiding a health crisis, by facilitating better care and better health.
    michael_demoratz
    10:15 - 11:30 a.m.
    Are You Being Served? Addressing the medically underserved in our community
    Frequently, our western-based approach to healthcare delivery is “onesize fits all.” We will explore how we can expand access to quality end-of-life care to the medically underserved, culturally diverse populations with specially tailored messaging. It begins with information on advance care planning and patient/family goals of care in a culturally sensitive and linguistically accurate manner. This makes it possible to move forward with aligning treatment plans with patient and family expectations for care.
    cordula_dick-muehlkestephen_peterson
    10:15 - 11:30 a.m.
    Effective Integration of Spirituality in Palliative Care
    We are becoming increasingly aware of the important role spirituality can play in the well-being of older adults. This workshop will provide a view of spirituality that can be used by all practitioners with all patients – religious or non-religious, cognitively aware or challenged, as well as adherents of all faith traditions. Presenters will explore the potential for spiritual growth that can come with aging and coping with serious illness, and will challenge participants to rethink their own views about spirituality and older adulthood.
    tim_vincent
    10:15 - 11:30 a.m.
    Deconstructing Diversity: Focus on LGBTQ inclusion
    Explore key issues related to diversity that impact the provision of care in, and management of, long-term care facilities. Recognizing that diversity can include many factors, such as race, ethnicity, sexual orientation, gender identity, religion, and more, this interactive session will offer recommendations to improve the management of staff and improve the care of residents in this changing culture. This workshop will focus specifically on considerations for building knowledge, skill and sensitivity to provide care for LGBTQ (lesbian, gay, bisexual, transgender, queer) community members.
    10:15 - 11:30 a.m.
    Blending Alternative Pain & Symptom Management with Traditional Pediatric Palliative Care
    This workshop will examine recent clinical data and family testaments regarding the use of various alternative treatments including CBD/THC blends and their increasing potential in pediatric palliative care. It will also explore the pharmaceutical and legal issues related to accessing these medications. -- David Sine, MD, Valley Children’s Hospital, Tulare Pediatric Hospice, and Hinds Hospice Pediatric Program
    Judy Thomas, JD
    12:15 - 1:15 p.m.
    The 10-Year Roadmap: Taking palliative care to the next level
    A look at the current status of palliative care and advance care planning in California and CCCC’s 10-year vision for creating the future we all want.
    1:15 - 2:30 p.m.
    Payer-Provider Experiences: Challenges in providing access to community-based palliative care
    Payers and providers are figuring out how to create the best model to provide access to quality community-based palliative care. In this panel you will learn about initiatives to bring palliative care to both Medi-Cal (through SB 1004) and commercially- insured patients. -- Robert Moore, MD, MPH, Partnership Health Plan; Linda Gibson, Collabria Care (formerly Napa Valley Hospice & Adult Day Services); Torrie Fields, MPH, Blue Shield of California; A representative of Hospice By The Bay; Brook Calton, MD, MHS, University of California, San Francisco (invited)
    2:45 - 3:30 p.m.
    Office Hours
    Bring questions. Get answers. Consult with experts on a variety of topics. Donate Life with Jaclyn Manzanedo. Using Videos as Part of ACP with Aretha Delight Davis. ACP Billing with Carol Wanke & Kelley Queale. Engaging Patients in ACP with Dave deBronkart. Patients in Denial with Teri Colett. Mediation Techniques with Christine Wilson. Working with Diverse Populations with Tim Vincent. Public Policy & Palliative Care with Teri Boughton. Palliative Care vs. Hospice with Cameron Svendsen. National Healthcare Decisions Day Efforts with John Tastad.
    Aretha Delight Davis, MD, JD
    3:45 - 4:45 p.m.
    Technology & Advance Care Planning: A scalable catalyst for change
    Technology has played a role in revolutions and social movements throughout the U.S. and around the world. Within this context, Dr. Davis will explore the role of technology in medical decision making and end-of-life care, discussing guiding principles, building blocks, outreach to different constituencies and barriers we’ll face in the years to come.
    4:45 - 6:00 p.m.
    Reception & Poster Session
  • May 13, 2016
    8 - 8:30 a.m.
    Registration & Breakfast
    Sandra Hernández, MD, President & CEO, California HealthCare Foundation
    8:30 - 9:15 a.m.
    How Palliative Care Fits into Trends in Health Care
    Palliative care increases patient and family satisfaction, improves quality of life and has been shown to extend survival. Dr. Hernandez will discuss how expanded access to palliative care fits into the new and highly competitive healthcare market.
    Katy Butler
    9:15 - 10:15 a.m.
    The Dream of a Common Language: Towards a shared reality for patients and medical teams
    Palliative care is only starting to develop a common language, understandable by patients and families, to express the changing realities of illness and death in an era of high-tech medicine. Doctors hoping to facilitate shared medical decision making may unwittingly use terms that families find frightening, abandoning or mystifying. In this personal retelling of her parents’ desires for “good deaths” and their conflicts with their doctors, author and former family caregiver Katy Butler will help you develop and refine a poetic, honest, “kitchen table language” to better serve and understand patients.
    jennifer_ballentinekarl_steinbergnathan_fairman
    10:30 - 11:30
    ACP and PAD: How physician aid-in-dying will (or won't) change our conversations
    Regardless of one’s ethical views on physician aid-in-dying (PAD), its availability as an option may affect many advance care planning (ACP) conversations. Now that PAD is a reality in California, healthcare professionals, and physicians in particular, may find themselves faced with questions with which they are not familiar or comfortable answering. What information do we as ACP facilitators and experts need to have in order to answer questions, explore requests, and refer patients to appropriate resources? How can we manage personal viewpoints and ethical commitments that may clash with those of patients seeking our advice?
    11:30 a.m. - 12:15 p.m.
    Office Hours
    Bring questions. Get answers. Consult with experts on a variety of topics. Cognitive Decline and ACP with Daniel Hoefer. ACP Best Practices with Lael Duncan. ACP for the Homeless with Delia Cortez, et al. PC Across the Continuum with L. Healy & J. Hammer. Psychiatric Dimensions of PC with Nathan Fairman. Engaging Faith Leaders with Julie Boudreau. Slow Medicine with Katy Butler. Working with ACP Decisions with Aretha Delight Davis. Physician Aid in Dying with Jennifer Ballentine. Emotion Fatigue with G. Jay Westbrook. Combating Compassion Fatigue in Pediatric Providers with J. Auger, K. Bower, D Hess.
    12:15 - 1:30 p.m.
    Lunch & Leadership Awards
    jill_mendlenmarvin_gordon
    1:30 - 2:45 p.m.
    Implementing Community-Based Palliative Care in a Managed Care Environment
    LightBridge and Health Net have worked together to develop a community-based palliative care program for Health Net’s most clinically complex members. Hear how community-based palliative care is being provided to a select group of Health Net’s sickest, most expensive and often most marginalized members living in the San Diego region. Presenters will discuss contract development, patient identification, tracking of metrics and the operational approach required to achieve successful communication and program operations within the managed care provider relationship.
    shelly_garone
    1:30 - 2:45 p.m.
    Palliative Care in Skilled Nursing
    While the goal of skilled nursing care is to maintain residents’ mental and physical function, learn how many of the principles and practices of palliative care are compatible with this goal and can be incorporated into nursing care. These include advance care planning, pain and symptom management, attention to emotional and spiritual well-being, and support to families.
    helen_mcneal
    1:30 - 2:45 p.m.
    Building Palliative Care: Organization and people first, clinical second
    Whether you are an MD, RN or administrator, if your organization is looking at palliative care or trying to make it work, join this session for a guided tour of what it takes to build a successful program. Using the Palliative Care Roadmap, we’ll walk you through what you need to develop your own plan for success. This session will give you the tools to build your program to maximize success… and minimize stress.
    1:30 p.m. - 2:45 p.m.
    Palliative Care: Between patient autonomy and clinician responsibility
    As clinicians, we tend to “present the facts” to patients with the goal of giving patients freedom to choose their own goals of care and treatment preferences. Based on real case studies, this session will address how two major ethical principles clash with one another and interfere with this concept when considering palliative care.
    julie_boudreauveva_arroyo
    1:30 - 2:45 p.m.
    Being Mortal: Using "Being Mortal" to spark community advance care planning
    In 2015, a documentary based on Atul Gawande’s best-seller Being Mortal aired on public television stations nationwide. Following this showing, the California HealthCare Foundation and the John and Wauna Harman Foundation funded 39 local organizations across California to host community screenings of the documentary. Learn about this exciting project including audience reactions and connecting with underserved communities. Plus, find out about holding a Being Mortal screening in your community.
    1:30 p.m. - 2:45 p.m.
    Palliative Care: Between patient autonomy and clinician responsibility
    As clinicians, we tend to “present the facts” to patients with the goal of giving patients freedom to choose their own goals of care and treatment preferences. Based on real case studies, this session will address how two major ethical principles clash with one another and interfere with this concept when considering palliative care. Speakers: Alain Durocher, PhD and Sarah Lee, MD, Kaiser Permanente, Downey Medical Center
    1:30 - 2:45 p.m.
    The Family Perspective: Interactive Q&A with adolescents living with a life-threatening condition and their caregiving parents
    In order to serve families best, we must know what is important to them. This workshop is a unique opportunity to intimately interact with a panel of adolescents living with life-threatening conditions and their caregiving parents. Participants will be able to ask questions of the panel in a safe, supportive and non-judgmental environment.
    1:30 p.m. - 2:45 p.m.
    Building Confidence Levels for Adult-Trained Nurses Caring for Children
    Providing hospice services to children in adult-focused programs can be challenging. This session will focus on ways to build confidence, competency and comfort levels from both an agency and staff point of view, and discuss the rewards and challenges of caring for children and their families at the end of life.
    2:45 - 3 p.m.
    Musical Interlude by Threshold Choir, Orange County Chapter
    Jay Westbrook, RN, MS, CHPNG
    3 - 4 p.m.
    Ethical Communication: What is it and how do I practice it?
    While many clinicians have learned the basics of communication, few have learned the Principles of Ethical Communication. Using case-studies and humor, Mr. Westbrook will show how to quickly establish trust and rapport; minimize defensive reactions; avoid patient manipulation based on clinician biases; respond in, rather than react to, a situation; improve clinical outcomes and increase patient satisfaction.
    4 - 4:15 p.m.
    Closing